KNOWLEDGE IS POWER
The more you know about this rare cancer, the better position you are in to help yourself or your loved one.
Here are links to the best websites we could find around the world and in Australia for kidney cancer information and support. If you find any other sites that you think are helpful, please let us know.
VALUABLE WEBSITES FOR INFORMATION AND SUPPORT
Steve Dunn's Cancer Guide
A fantastic resource, mostly for kidney cancer but some references to other cancers... information on treatments, survivor stories, coping with cancer, assessment of alternatives... just about anything you need.
Kidney Cancer Association
American organisation of patients, families, doctors and health-care officials, all involved with Kidney Cancer. One of the best sites for information and support.
The National Cancer Institute
This USA Government website is an excellent source of information about kidney cancer. There's an easy to read and easy to understand description of what kidney cancer is, how it is diagnosed, treatment options, descriptions of treatments, and more. To go to the section on kidney cancer, click here.
The American Cancer Society
This voluntary organisation based in the USA runs the most comprehensive website on cancer and cancer-related matters on the net. To locate information on kidney cancer, find and click on the link "Choose a cancer topic" on their home page and choose Kidney Cancer from the list that displays, and click on Go. There are also several support options on the site and lots of general information about cancer.
Kidney Health Australia
Has a lot of information on kidney health in Australia and a long list of links to other kidney-related sites.
CancerBACUP
Britains leading cancer authority... lots of information about Kidney Cancer.
Ed Everest’s guide
A guide to the best kidney cancer websites on the net.
Cancer Council Australia
This is the biggest cancer-related organisation in Australia and it encompasses a Cancer Council based in each state and territory. There's a variety of information on their website relating to cancer in Australia, and links to each state-based Council website. These state-based websites are valuable sources of information about locally-based support groups and other support services.
Cancer Council NSW
NSW authority for all types of cancer.
Australian Cancer Research Database
Read what is happening in Australia, and search for trials, for all types of cancer... some kidney
Renal Resource Centre
The Centre provides renal patients with information and educational material to assist them in managing the effects of renal disease on their lifestyle. The Renal Resource Centre is a community health service of Northern Sydney Health, and resources are available for use throughout Australia by all those affected by kidney disease, general practitioners, health professionals and renal unit staff.
The Canberra One-Stop Cancer Web-Shop
“Dedicated to helping cancer patients and carers in the ACT and NSW Southern Area health region locate reliable web resources of interest to them.” Includes some links of Australia-wide relevance.
Assessing Cancer Information on the Internet
A valuable information page on the American Cancer Society website giving advice on how to use the internet for finding information on cancer, and how to determine if that information is reliable.
KCUK - Kidney Cancer UK
Support organisation for patients and carers in the UK.
FORUMS (MESSAGE OR DISCUSSION BOARDS) AND MAILING LISTS
Join the ACOR Kidney-Onc listserv, and be part of an international mailing list of 1,000+ people actively involved with kidney cancer. Email questions, and you will get plenty of information and support.
Our own AKCOS forum for an Australian perspective.
Kidney Cancer Association forum
Kidney Cancer UK (United Kingdom) forum
American Cancer Society forum
Try a search engine... just type in kidney cancer and see what happens
